De Santis, M., Herva, C., Weinman, A., Bosi, G., & Bottarelli, V. (2019). Patient empowerment of people living with rare diseases. Its contribution to sustainable and resilient healthcare systems. Annali dell’Istituto Superiore Di Sanità, 55(3), 283–291. Retrieved from https://annali.iss.it/index.php/anna/article/view/951